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About the solution
While there are currently no cures for ALS, there are three FDA-approved treatments that may help slow down the progression of ALS for some patients. Similarly, there are over eighty clinical trials underway right now with the goal of finding effective therapies. We have created an easy solution to what is normally daunting.
Together, ALS patients and caregivers are proud to share the ALS Signal: Clinical Research Dashboard that provides all stakeholders in the ALS Community - clinicians, pharmaceutical companies, researchers, patients, caregivers and families - with comprehensive and critical information on the full scope of treatments in 80-plus trials worldwide. This dashboard will help people living with ALS access, evaluate and be empowered with information on clinical trials to take to their physicians that we hope will lead to new treatments.
By working on this tool with top neurologists around the world, the I AM ALS Promising Therapies Team - comprised of ALS patients, advocates, caregivers and families - has already helped those living with ALS to:
- Find and evaluate promising clinical trials, often the most challenging step in participation
- Initiate more informed discussions about treatments with their medical teams by arming people living with ALS with comprehensive knowledge and recent details
- Provide input to pharmaceutical companies looking for data on trial design and the scope of drugs in trials, a key to continuously improving the science.
Our intent is to empower everyone who wants to seek new treatments and share this new resource with people living with ALS around the world, offering hope and community as we rewrite the ALS story.
https://www.youtube.com/watch?v=aeLYTqx6a9w
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
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Mother creates device to help his son to walk again
Cerebral palsy
Angelman's syndrome
Developmental motor skills disorders
Fine motor delay
Motor developmental delay
Muscular weakness
Motor dysfunction
Amyotrophic lateral sclerosis
Motor neurone diseases
Muscular dystrophy
Neuromuscular disorders
Leg
Foot
Wheelchair
Walking
Recreation and Leisure
WALKING: Walking
WALKING WITH A WALKING AID: Walking with a walking aid
Cerebral Palsy
Assistive Daily Life Device (to help ADL)
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Walking Aid (wheelchair/walker/crutches)
Impaired movement
Restoring mobility
Managing Neurological Disorders
Maintaining Balance and Mobility
Caregiving Support
Neurology
Pediatrics
Physical Medicine and Rehabilitation
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628
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Morph Wheels - Foldable wheels for wheelchairs
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491
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Paraplegic invents Do-It-Yourself Handcycle combining a bycicle and a wheelchair
Paraplegia
Cerebral palsy
Amyotrophic lateral sclerosis
Motor neurone diseases
Muscular dystrophy
Spina bifida
Physical disability
Leg
Wheelchair
Walking
MOVING IN A WHEELCHAIR: Moving using a wheelchair.
Cycling
Riding
Urban exploration
Walking Aid (wheelchair/walker/crutches)
Assistive Daily Life Device (to help ADL)
Paralysis of the legs and lower body
Mobility issues
Solutions for Disabled people
Restoring mobility
Promoting self-management
Promoting inclusivity and social integration
Neurology
Physical Medicine and Rehabilitation
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